There is a cruel dream that I have…….
That I am sure most of you have also shared.
Whether you have CES, another Chronic Illness, or whether you are in constant pain on a daily basis….
We have all had these same thoughts on many occasion.
A little backtracking before I get to the dream.
Whether it be CES or Chronic pain…
Whether it be in the USA, Canada, the UK, or some other country…
The truth is that we treat damaged cars better than damaged human beings.
Case in point:
In most countries, you have Auto Insurance to protect your vehicle.
Your car gets in an accident.
You call your Insurance carrier.
You tell them your car is damaged.
They arrange to have the car quickly inspected by an adjuster.
The adjuster determines that your car is indeed damaged.
The insurance company then pays for you to have your car repaired, or even replaced, often within 1-2 weeks after your accident.
Then we have actual human beings.
Something happens and you end up injured. You now CES, another Chronic illness, or now am in chronic pain.
You see Doctors.
The Doctors determine you are indeed injured.
You go to whatever agency in your Government that handles benefits for the disabled and injured. You apply for those benefits.
In most cases, you end up waiting MONTHS or even YEARS before you finally are awarded benefits, if you are awarded benefits at all.
I have read countless comments from other CES sufferers out there, no matter what Country they reside in, that are having nightmares in trying to get the benefits they deserve from their own Governments.
We will pay to fix a damaged car, seemingly in the blink of an eye, but will drag our feet forever before paying to take care of a damaged human being.
Well, in the case of CES or Chronic Pain, it is because we have an invisible monster lurking over our shoulders at all times.
We are like the young child who wakes up screaming in the middle of the night, screaming for his/her parents, telling them that there is a scary monster living under the bed, and that the monster wants to eat the child…
The parents, of course, look under the bed, see nothing, and then calmly tell the child that everything is alright, go back to sleep…..
The child continues to wake up screaming every night.
The monster is real. They see it. They know it wants to eat them. Why do the parents not understand this?
Because, the parents cannot see the monster.
We CES and Chronic pain sufferers are saddled with an invisible monster that most people cannot see. The vast majority of our symptoms are invisible to everyone but us.
We go to our Government agencies, seeking assistance for our disabling symptoms, we list all these disabling symptoms, and then we are met with a huge “PROVE IT!!” type response.
Many of our symptoms, pain being the main culprit, cannot be proven.
We spend the rest of our lives spending endless days trying to PROVE to the outside world that our monsters do indeed exist.
Like I have said on many occasions, like many of you, I look pretty normal, health-wise. I have a limp due to my foot drop, my left leg is atrophied due to nerve damage, but other than that, I look HEALTHY. Like most of you, my problems are all internal, hidden from public view. I have hidden monsters.
For the benefit of all these people and agencies that question the existence or disabling characteristics of our monsters….
I have my cruel dream.
To the person, agency, or Doctor that is thinking over the question as to whether or not I am truly disabled, and whether or not I should receive benefits…
I would wish that they live ONE WEEK in my shoes.
Just ONE WEEK.
ONE WEEK of near constant pain in the back or in the legs.
ONE WEEK of sleepless nights due to the pain.
ONE WEEK of going to stand up from a chair, only to lose control of your bowel or bladder.
ONE WEEK of being out in public when you lose control of your bowel or bladder.
ONE WEEK of wanting to be intimate with your partner, only to find that the “sexual areas” of your body are completely numb.
ONE WEEK of hobbling around on a bad foot, or two bad feet, that are crippled with the effects of Foot Drop.
ONE WEEK of having many parts of your lower body completely numb. A WEEK of not being able to feel your feet or your shoes, your butt, your groin area, your lower back, etc.
ONE WEEK of crippling Depression brought on by the fact that you are constant pain, are constantly worried about losing control of your bowel and bladder, you have difficulty just walking across your home, and the belief that most people probably think you are just a whiner and complainer who is exaggerating everything since they cannot see most of the symptoms you CLAIM to have.
If only these people could walk in our shoes for ONE WEEK!!
Then, maybe…. just maybe…..
We could get treated as well as damaged cars.
We could be injured with CES, have this verified by a Doctor, and then have our Government agencies pay us the benefits we DESERVE…..within 1-2 weeks just as if we were a damaged car…..rather than dragging out our cases for months, or years, and without making us go through miles and miles of red tape and paperwork in order to prove that our monsters are indeed real.
We like to say that we would NEVER wish CES or Chronic pain on anyone….
Well, I’m changing my wish…
To all those that doubt us, I do WISH they would spend a week living in our shoes.
I seriously doubt that they would enjoy the experience.
That’s my dream!!