Does anyone else out there in CES-Land suffer from Venous Insufficiency as a result of their CES?
In all my surfing of CES-related materials, I have found very little mention of this condition in relation to CES patients.
My CES nerve damage has affected my left leg and foot much worse than my right leg and foot. Ever since I woke up from the surgery that crippled me, I have had limited movement in my left foot and ankle, resulting in immediate foot drop, and I have also had numbness and nerve pain issues to quite a severe level in that foot and leg. Right from the moments after the surgery, it was obvious that the circulation had also been damaged in that leg and foot. My left leg and foot were always purple and swollen, whereas my right side appeared pretty much normal.
I got my first blood clot (DVT) in my left leg about 1 month after my surgery. I spent a week in the Hospital undergoing blood-thinning treatments while worrying myself sick that any slight movement might dislodge the clot, travel to my lungs, and kill me.
After that first clot, I was put on daily doses of blood thinning medications AND was prescribed anti-embolism stockings to wear in order to help the circulation in my legs.
I got my SECOND blood clot in that same leg three months after my surgery, and after I had been on medications and wearing the stockings for two straight months. Back to the hospital for another week, and another week of worrying that any slight movement might kill me. The Doctor was shocked I had gotten that second clot, considering I was taking every precaution, including medications, in order to prevent another clot.
Most worrisome with both clots was that due to the CES symptoms, I was unable to recognize many of the symptoms of the clots themselves. Clots in the leg are usually very painful, whereas my legs were basically numb most of the time due to the CES. The pains I did get in the leg were due to the nerve issues courtesy of the CES, I never felt the pain from the clot itself. The clot will often cause your leg to swell noticeably, and also the leg will turn red, but I had those symptoms from the moment I woke up after the surgery.
This ended up being the main factor that killed me ever being able to work again. I was told to stay home, rest, and hope that my condition improved, meaning the circulation would have also improved, and that I could hopefully then resume my career. My condition never improved. All the CES symptoms persisted, along with the horrible circulation in my left leg.
** A specialist relayed to me that the nerve damage to my spine was so severe in the nerves that lead to the left leg that the leg was not getting the necessary inputs from the brain to pump blood back up towards the heart, resulting in the blood tending to pool in my left leg and foot. **
I have been taking large amounts of blood thinning medications every day since that first clot in 1999. I have been on these medications for nearly 14 years now. Taking high doses of blood thinners is fun in itself. The smallest bumps into an object turns into massive cuts and bruises. Just brushing my teeth often makes my gums bleed. Getting an injection of any kind often results in a good deal of bleeding that still freaks out all my nurses. Any type of surgery requires that I be off these medications for at least a week in advance so that I do not bleed to death on the operating table.
I’ve resigned myself to the fact that I’ll be on these medications the rest of my life. I have not had blood clot #3 YET, and have not had a clot since June of 1999, but I like to think that the current high doseage of the medication, along with my practice of frequently laying down during the day has allowed me to beat clot #3 thus far.
My left leg is still crap, is still frequently swollen and discolored, and is the cause of all my walking difficulties thanks to the severe drop foot.
Has anyone else out there run into any problems with their circulation since getting CES? I know mine is directly related to the CES because I never had a circulation problem in my life prior to that surgery.
Have any of you also suffered DVT blood clots in your legs due to the CES?
I’m just curious.